This information can be used by researchers to put in place culturally-responsive recruitment and research strategies that facilitate the participation of African American women, and their dependents, in clinical trial research. As far as we know, this systematic review is the first to assess African American women’s self-reported barriers to participation in clinical research irrespective of disease type. 16 The current review focuses on African American women who are at particular risk of needing cutting-edge clinical care, yet are less likely to be a part of the studies that are essential to her receiving well-informed treatment. This differentiation matters as previous research reports sex differences in reasons behind the willingness to participate in clinical trials.
10- 12 Furthermore, studies report differences in factors that influence parental decision-making by race/ethnicity, 13 suggesting that targeted recruitment efforts aimed at African American women have the potential to increase their participation in clinical trials, as well as the participation of their children.Īlthough the information on perceived barriers by African Americans in general exists, 14, 15 there is little information about the reasons specifically mentioned by African American women to not participate in clinical research.
8, 9 The importance of increasing African American women’s participation in clinical research extends to pediatric trials since mothers often play a pivotal role in the management of their children’s health and typically assume responsibility for health decisions, including their participation in clinical research. 1- 3 Although African American women are overrepresented in both negative health conditions and disease, 4- 7 they continue to be underrepresented in the efforts to find treatments for disease.Ī better understanding of subgroups within minority populations is essential to improving the risk/benefit profile for a wide range of prevention and treatment efforts. More than 25 years have passed since the NIH Revitalization Act of 1993 was enacted to improve the representation of minorities and women in clinical research, yet the participation of minority women remains below that of men and Caucasian women.
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